Friday 26 April 2013

Back to Reality

I have been delinquent, again, about posting.

It is now Friday.  Radiation finished last Thursday and it was uneventful.  It was a little sad to say good bye to my techs but at the same time I hope I don't have to visit them again for a very long time!

Last Friday I had a bone scan.  Oh goodie, time for a little scanxiety.
Gotta love cancer, it really has it's own language.  I have an MO and an RO and a BS but I was not allowed to have a PS.  I've gone through chemopause and grown Taxol fuzz and now it is scanxiety.

To help settle my nerves, on Saturday morning bright and early I hopped a plane to Toronto to meet my baby nephew.  And what a cutie he is! I think that I will have to fit in regular visits to watch him as he grows up.  Afterall, I have to help ensure he does not end up a Leafs fan.

I also made it to a Blue Jays game.......yes, I admit I am a fan, and I got sucked in by all the hype that finally a good team was being fielded again.  Not quite true, but they did beat the Yankees the day I was at the park.


I really wish I had remembered to bring my camera, my phone camera is getting worse by the day.  Ah well, you get the general idea.
Unfortunately we didn't get to catch a foul ball.

In all my visit to Toronto was a wonderful escape from reality and it was a little difficult getting back on the plane to return to my real life.

I have never had any real side effects from the radiation.  I got a few tiny blisters but they are in areas numb from surgery so I don't even notice them.  My skin was pink but it is starting to turn to a tan now.  There is a risk that as the skin changes the area will get itchy but I have not noticed anything so far.  Basically radiation has been a walk in the park.
It was a little mentally tiring at times as I had to be at the cancer agency every day and I always had to plan around my appointments but it was only 16 days.  Not something to actually complain about.

Scanxiety will rear its ugly head again next week.  I have a CT scan on Tuesday and I will get the results on Wednesday.  Fingers crossed the Herceptin and Tamoxifen are doing their things and everything will continue to be negative.

And I have reached out to my long term disability case manager to get the return to work process started.  I am still aiming for the beginning of June.  If that happens it will be so much easier to pretend that my life has returned to normal with just the every 3 week visits to the cancer agency for my Herceptin infusions and occasional check ins with my oncologist.

And lastly, Saturday Ian and I celebrate our wedding anniversary.  And as I can never say often enough, I don't know how I would be getting through this adventure if Ian wasn't helping me every step of the way.

Friday 12 April 2013

I Almost Lost My Arm Today

I have been a delinquent blogger yet again.  I have been busy going to radiation and walking around the seawall.  There really has not been much to report.

Radiation is Monday to Friday except holidays so there was a nice 4 day break at Easter since Easter Monday is a stat holiday in BC.  I am now at the three quarter mark and so far it has been very uneventful. Until today.  Today one of my radiation techs tried to cut off my arm.  She was horrified, I was glad it happened to me and not to some little old lady or another patient that is stressed out and not coping well.

I have discovered during my radiation treatments that I have been receiving a very customized program.  This for a few reasons:
1. I was born with this weird thing called pectus excavatum.  Basically this means that I had an indentation in my chest due to an abnormality in the growth of my sternum and some ribs.  I had a surgical repair done as a kid but I still ended up with a "funny shaped chest wall".  Yes, that is the exact medical description I was given recently. :P
2. I had a small piece of skin at my sternum that had cancer.
3. There were also metastases in my sternum so part of the goal of radiation was to hit those areas.

Normally radiation for breast cancer patients may only slightly touch on the sternum whereas my radiation oncologist wanted to blast away at my whole sternum.

My radiation involves both photon and electron treatment.  I believe that many patients do not receive the electron treatment.  It is the electron portion that includes a large adaptor that could cut off my arm and it was the cause of the radiation tech freak out today.

The part of the radiation machine that actually emits the radiation is pretty neat.  There is a glass plate that is about 1 foot square through which the radiation passes (in the picture the glass plate is not shown).  On the inside of the glass there are about 40 narrow metal fingers that stick out from either side.  The metal fingers, probably made of lead, since they block radiation, are lined up in a specific pattern so that radiation can only come through the glass in the desired way.
Here's a picture of the fingers before set up:


The machine is set up so that the fingers are in my required pattern and then a light is turned on and lights up on my skin exactly where the radiation will hit.  It is the upper portion on the treatment area that is traced out in ink and becomes my radiation artwork.  This artwork is used to help line up the electron adaptor to the treatment area.

During the set up there is also a ruler that is displayed with light on my skin.  The ruler measures my distance from the radiation source.
I also have 3 radiation tattoos.  Two tattoos are used in the very initial set up, I think to ensure that I am in exactly the same position I had been in during my initial CT plan development scan.  There are red lights emitted from the ceiling, one that crosses me vertically and the other crosses me horizontally, and they must hit the tattoos.  The tattoos are just single needle point pricks so not too big and noticeable.
The third tattoo is used in the electron set up, probably in a similar fashion.

The whole treatment takes about 10 minutes.

Today's little arm cutting off incident occurred after my treatment was complete.  The radiation machine looks sort of like this:


only it is an older version and is blue instead of white.
The electron adaptor attaches to the curved metal piece that is sticking out from the radiation emittor.  In the first picture showing the metal fingers the holder for attaching the electron adaptor is not attached.  The electron adaptor sticks out about a foot from the radiation source and sits very close to my chest and will sometimes actually touch my left arm close to my armpit.  Lucky for me I don't feel it as that area is still numb from surgery.
Anyway, while the electron treatment is happening I am essentially sandwiched between the adaptor and the bed so when treatment is complete I can't move until a tech comes in and lowers the bed enough that I can move my arm out from under the adaptor.

Today, the tech raised the bed instead.  Oops.  And then just to make sure she really freaked herself out she raised the bed a little bit more.  In all she probably only raised the bed about half an inch but she was totally horrified.
I understand that.  You really never intend to skewer a patient.
I, of course, thought it was hilarious and could not stop laughing.  It just felt like the perfect end to a pretty yucky, rainy Friday.

It is just one of those things that happen.  No big deal, I wasn't hurt, no bruising or anything.  I think it just a part of healthcare, everyone does the best job they can but everyone is still human and occasionally the wrong button gets pushed.
That is why for the really vital stuff there are always several different checks to minimize the human impact on the treatment and prevent errors.

Oh, and as for radiation side effects.  So far they have been minimal.  My skin is a little red and I may be slightly more fatigued, but I am currently walking about 50 K a week not including trips to the cancer agency or grocery store so probably not.  Apparently the fatigue is often partly due to dehydration caused by the radiation so I am trying to stay well hydrated.

So that is pretty much radiation in a nutshell.  Have an awesome weekend everyone!